Kuala Lumpur: Prime Minister Datuk Seri Anwar Ibrahim has extended financial assistance to help cover part of the medical expenses for Sophie Abdul Raof, a 10-month-old baby suffering from complications of the rare SCN8A genetic mutation. The cash contribution was presented by the Prime Minister’s Political Secretary, Datuk Ahmad Farhan Fauzi, to the baby’s parents today to ease the family’s burden.
According to BERNAMA News Agency, the SCN8A genetic mutation is a rare condition affecting the baby’s nervous system. It causes severe disruptions to the brain and nerves, leading to persistent seizures, mobility difficulties, and various health issues requiring costly treatment.
During a visit to Sophie, Datuk Ahmad Farhan Fauzi expressed his empathy for the family. “I had the opportunity to visit Sophie, who is battling complications from the SCN8A genetic mutation. Sophie now requires continuous treatment to help her sustain her life,” he stated in a Facebook post.
He added that during the visit, he listened to the concerns and resilience of Sophie’s parents, Raof and Atiqah, who have been tirelessly seeking the best treatment options for their little one. The financial assistance from Prime Minister Anwar Ibrahim is aimed at alleviating some of the financial pressures associated with Sophie’s high medical expenses.